Friday, February 11, 2005

Rendell yesterday and once again I had to wait more than a hour and a half to see him. But I’m giving it time and being patient. We agreed to dispense with the patch entirely and he’s giving me a light dosage pill in the oxycontin family. I do hope it makes a difference. I was going to start it last night but Rite Aid had to order it and it won’t come in until Monday and it was too cold to be hustling around the city looking for a pharmacy that might’ve had in in stock so I decided to simply stick with this last patch until Monday and switch then. It’s kind of a miracle that I’m able to sit and make this entry–to be coherant at all----and I think it’s only because I finally broke down and bought a cup of coffee. Otherwise I’d still just be drifiting in the wind of the Duragesic.

It’s a brisk, clear February morning. Piano lesson number two. I will graduate from "Music Land" and move on to "Patterns." Not sure whether I’m going to take the train or a cab.

Later–

Proud of myself that I took train down and back. Lesson fine. Starting on chords. Adam is very encouraging.

Capote letters dull so far.

Box of Betsy Ann Chocolates from Mom for Jay and me. I do a load of laundry, read the Voice. Jay comes home and we hang out and watch a documentary about Trekkies.

Tomorrow is the official opening of Christo’s "Gates Project" in Central park so Jay and I are planning on going. I remember reading about the possibility of this at least 15 years ago.

Tuesday, February 08, 2005

I’m trying to find my bearings again. God, though, nausea is hard to deal with. I wake almost every morning slightly nauseous and dizzy and with absolotely no appetite. My head feels shaky. I can’t think straight. What I’ve been doing lately is simply flipping on the TV but in the end that just makes me feel worse. So this morning I’m back here in the journal.

Drinking a cup of tea, a glass of flat ginger-ale, and I just finished a chocolate chip granola bar.

A little bit later—After talking to Jeff (I’d planned on calling him just after 9 but he beat me to the punch) about some interviews he did about the recent flap over gay marriage here in the city) I was able to get myself together to go downtown to meet up with Bruce for lunch. I took a cab both ways. I’m starting to think the pain patch just isn’t going to do it for me and that we’ve got to find a better way to control the back pain without filling me up with such toxic stuff. Really, I sometimes I have trouble putting sentences together and I’m nauseous half the time and my appetite is shot and I’m convinced it’s all related to the patch.

Bruce and I hung out at his place for a few minutes, catching up----health problems for me, financial problems for him----and then we walked a few blocks uptown to a great bagel place on 1st (I think it was 1st Avenue). I could barely get down a bowl of chicken soup and a bagel. But I got enough in me me to at least begin to feel a little bit more normal. Afterwards, he put me in a cab. What a sweet guy Bruce is!

Crashed when I got home, slept for about an hour, I guess, and woke feeling refreshed and capable of salvaging something from the day. I’d forgotten to call in for jury duty Sunday night so I called today, hoping I could get a postponement, and I did, of course. Jim Higgins called and we talked about getting together again though without making any specific plans.

Publisher’s Weekly review is out. Towards the end the reviewer writes: "McGowan is not always a graceful writer (‘the only anecdote (sic),’ he tells us, ‘for this strain of senseless tragedy that so often infects the world is love, family’) but his style is familiar and easy, as if he’s confiding his experiences to a trusted friend." I don’t know, aside from the typo—anecdote should be antidote, of course, I don’t think that sentence lacks grace.

Saturday, January 29, 2005

7:45PM

Not a bad day. Some major weakness early in the day but managed to nap that off and then finally take control. The piano guy–Leopold Folder–came around 2 with the lease papers. He says I’ll need to move the bookshelves to get the thing in here. Big pain in the ass job but it will be worth it. Moved chapter ten forward just a tad----really, it was hard to focus today----getting the boys out of the pool and into the locker room. Really, all I’ve got to do now is place them back on the reservoir and then let the shack scene unravel. It’s going to be an awfully long chapter. It feels like it’s asking to to be split up but I don’t need to worry about that right now

Edited chapter two and did the 77 blog. Really hilarious moment when I talk about not being taken when the rapture comes and worrying in the very next breath about the March of Dimes Walkathon being rained out.

Spoke to Mom and Gary and Fred and Robert. Unemployment checks have finally resumed so that’s a bit of a relief, though I’m in good shape, actually.

Craving for pot roast and cauliflower smothered in the Velveeta cheese sauce so there’s a roast in the oven and I’ll be putting the cauliflower on shortly.

Friday, January 28, 2005

3:32PM

So much weakness. And I’ve lost more weight. Down to 132 lbs. I don’t know why I’m surprised. Keep someone in the hospital for a week and don’t feed them for more than half the time and they’re bound to lose weight. So now I’ve really got to work on getting some poundage back on.

It’s so cold and I find myself just holding my breath until the cold weather ends. It feels as if we’re all sealed below some threshold of life and until the temperature rises to a certain degree nothing will feel right again.

I just rented a piano. They’ll be delivering it next week some time. Yesterday I spoke with a guy named Adam on the UWS who is going to give me lessons, starting a week from today. I haven’t told anyone around me because I wanted to make sure I was actually doing it before I started talking about it. It’s something I’ve always wanted to do. And a few weeks back I got it into my head that somehow piano and zen together might be the proper complementary treatment I need for this cancer. Don’t ask why. I know it will be frustrating at first, learning the piano, but I really think I’ve learned the value of patience and have the understanding now that if I wait long enough and do step one and step two and step three and step four, eventually I’ll reach a step that will seem like several steps ahead and things will begin to open up.

Went to a Gilda’s Club orientation session yesterday. Not much to say about that. Four of us, including one facilitator, and the other three aren’t actually cancer patients but loved ones of cancer patients. But that’s fine. It’s a great space and they have a really cool library and I’m going to give it a go. The support groups are broken up into patients and loved ones so it’s not like I need to worry I’ll be in a room full of cancer-free loved ones wringing their hands over the fates of their friends and lovers.

Some talk tonight about Jay and I having dinner with Cara and Pete. I wasn’t feeling too hot after trip to Rendell this morning but after a nap seem to be rejuvenated.

Wednesday, January 26, 2005

A few short, quick entries scribbled in the hospital:

January 22, 2005
Saturday
Roosevelt Hospital
Transcribed from a black Mead.

I’ve been allowing–no, not allowing—let’s just say I’ve been unable to find any sort of strength to rise above the bare minimums of survival—a kind of grunting, culture-less, TV-soaked desparation. Waiting, just waiting to heal. Waiting for the moment when I can reach back up above the sheer misery of decline—as if that decline wasn’t worthy of inspection—as if I simply could not begin to THINK again until I re-surfaced at a specific level—as if everything below that specific level is unchartable. And so the condition feeds of itself and it just gets worse and worse. Finally, tonight, despite being nauseous and despite being constipated and despite the sense that my entire digestive system is on the verge of collapse----I felt the urge to pull myself away from the TV–from Bushspin ("The speech rivaled Kennedy’s) and Bushrevulsion ("The speech was too broad to have any real meaning—and hasn’t ‘spreading freedom in the world’ been one of the pillars of US foreign policy since the end of the 2nd World War?") to "Malcolm in the Middle" and "Golden Girl" re-reruns–and really bottom of the barrel junk (it’s like Doritos with extra cheese, like that new, huge burger at one of the fast food chains), VH1's 90's show, Part Deux----to pull myself out of the zombie-waiting mode I’ve been in for days—and either continue reading the Hollinghurst or look at the Edna St. Vincent Millay sonnets Robert gave me this afternoon, or to write.

I chose writing. But unfortunately, even that tiny bit of effort (the paragraph above) has left me exhausted. I’m dizzy and need to stop for a second

January 24, 2005.
Roosevelt Hospital.
Monday
Transcribed 1-26 from a black Mead.

I’m trying not to be scared. I’m trying not to fall into the deepest of depressions. But it’s hard since, though I’m feeling better today, the news from Sara was not particularly encouraging. And then the hospice care people show up with a large brochure and I have to turn it face downwards so I won’t have to look at it.

Mom and Gil left. I would have liked their company today but I couldn’t bring myself to say so. It’s funny, but talking to Mom about my health—it still feels like a secret. It still feels like, say, being gay felt years ago. I’m ashamed of my illness—and instead of bringing comfort, Mom’s presence sometimes brings pure anxiety. Only sometimes, I should stress. I was grateful that they came. I was so glad to have them there, especially on Saturday and Sunday when not much was going on.

January 25, 2005
Roosevelt Hospital
Tuesday
Transcribed 1-26 from a black Mead

Clarity. Strength. Focus. I wish I knew how to hold onto them and summon them when needed. I fear they’ll collapse the next time I begin to feel the slightest bit ill.

It’s Tuesday afternoon and the sky outside my window on the 9th fl., looking south on Manhattan and west to the river and Jersey, is mottled all purple and white and blue. There are great swaths of ice-chunk collecting along the sides of the river. The city looks locked down, untouchable, like a portrait of New York in a super-realistic snow dome. The sun is setting. Down behind the Houston-like car show-rooms—ten, fifteen stories of dirty black glass hoisted up here and there along the broad whorish avenue. I’m finally going home, after what seems in hindsight to be a sort of hospital marathon—five procedures in six days–plus a cat scan and an x-ray and 3 days of NPO, and a late-night MRI that sorely tested my skills of self-calming. Jay and Fred will be here soon to take me home.

Saturday, January 15, 2005


Almost twenty-five years ago, on a hot June night in New York City, I went to see a Broadway show for the first time. I was seventeen years old and the show was Sweeny Todd with Dorothy Louden and George Hearn. I went alone and I had a fourth row orchestra seat, I think, and I ‘m pretty sure I paid only twenty five dollars for it. I wept throughout the opening number, overhwhelmed by the sheer power coming from the stage,and I wept as the show progressed and I wept at the end. After the show I walked out of the Gershwin Theater, onto 52nd Street, and went to the corner at 8th and phoned my mother in Pittsburgh to tell her what an experience it had been. As I spoke with her the big marquee from the Adonis movie theater across the street shone on my face and I found myself anxious to finish the call. I did, then crossed the street and entered the Adonis for the first time in my life.

I hadn’t gone to the theater alone again until Thursday night. Again it was Sondheim. This time a revival of Pacific Overtures, the Sondheim show that preceded Sweeny Todd in 1976. I paid 65 dollars for my Studio 54 mezzanine seat. Well, I was disappointed, though I did weep at the beginning, wept, as I often do, at the sheer exhilerating thrill of seeing live theater. But I bring such high expectations with me to Sondheim that I’m bound to be disappointed. And I wasn’t feeling too great. Sondheim’s music seemed stingy. The show’s polemical tilt seems to water down the power of the work, prohibiting the kind of high high moment that lifts shows like Company and Sunday in the Park with George and Passion into places so unexpectedly beautiful and rare that the music seems to work into your DNA and change you forever.

I didn’t go to the Adonis movie theater afterwards. It’s gone, razed nearly a decade ago now, I think, along with every other building on that block—the Chinese place on the corner, the Irish place where I met Kieren–to make way for a high rise apartment building with little pyramids of light on the corners that refer to the World Wide Plaza next door—and a mere two retail tenants, Duane Reade and Blockbuster, on the street level, two big chains that face the bustling, historical 8th Avenue, in all their uniformity and bright flourescence, with the callowness of a nineteen year old midwesterner freshly arrived from mallworld. This sad little block, on 8th Avenue between 51st and 52nd Street, is without a doubt one of the best examples of the stultifying effects of gentrification. You start with a half dozen buildings in a half dozen styles with a half dozen businesses----a lavish gay porno theater, world-famous, once a legitimitate theater, now crumbling towards the exquisitely baroque beauty that can only be found in the neglect of greatness, those smoke-stained nymphs dancing still up on the ceiling----a real New York Irish pub right next door-- with steam tables and all--- where all the bartenders are direct from Ireland, with a family of regulars, and a long, legitimate history of its own—and then four or five other independent businesses, a dry cleaner, I think, a newspaper/cigarette place, the Chinese place----and you replace all this vibrant diversity, all this legitimate New Yorkness----with one giant swath of uniformity, two-thirds for the drugstore, the final third for the Blockbuster—and suddenly, this block, once fascinating and full of life, filled with gay men fucking and Irish men drinking and Chinese people serving Chinese food and Pakistani men selling cigarettes—has been reduced to a particular amount of retail square footage in the large schemes of the Duane Reade people and the Blockbuster people, located who the hell knows where—and the block is no longer urban, really, the block ceases to be a city block, but has become, instead, just another piece in the ever-expanding pie of the big-chain-mall-world that is increasingly blotting out distinctions and differences all over the country and all over the world.

I walked up this block, after seeing Sondheim’s Pacific Overtures, trying to imagine the Chinese place and trying to figure out the middle of the block, where I think the Adonis was, the bright white marquee shining so bright, and trying to imagine the Irish pub next door, the talk and smoke and music rushing out whenever someone would go in or out, but I couldn’t see anything. I couldn’t see anything at all. It was if they’d managed to eliminate even the ghosts of that time, all of it swallowed up whole by the clean, happy consumerism that has so greedily replaced it.

Saturday, January 08, 2005

9AM

There was S–on Wednesday, who said I should write a letter to the hospital complaining of my troubles during my last stay there. And that I should have a talk with Jay about the fact that he never cleans the kitchen or the bathroom. Maryanne called from GLWD to do an intake interview and I got the first delivery Friday morning, excellent eggplant parmesan and a big oatmeal cookie and some weird chicken gravy that I wasn’t sure what to do with. Thursday was GMHC in the chilly, wet Chelsea morning—to sign the final copies of the will and health care proxy, which wasn’t strange or a big deal or anything at all, since I’ve done it twice before now over the past ten years. Then later I saw Rendel and he gave me a shot of Nandroline (sp?) and a prescription for megace, which is now in tablet form. As I was leaving I noticed Kevin sitting in the waiting room and we had a kind of emotional, stilted conversation. It was strange seeing him (the doctor) waiting like a patient, and he seemed diminished and vulnerable and I got the impression that he was holding back tears. I was afraid to inquire too deeply about his condition so I just asked general questions and then talked about myself, the chemo, etc. As I stepped out onto 82nd Street and started walking east towards the train, I found myself rushing to get away, anxious to shake off the exchange. And then it ocurred to me that I was treating him like a pariah, as if only he were dying, as if I was healthy as a horse and only visiting the doctor for some routine check-up. The truth is, of course, is that we probably have a great deal to talk about at this point, having each received a terribly bleak prognosis within the last few months, and I made a mental note to myself, walking east now across 81st Street, past the planetarium, to contact him at some point and suggest lunch or coffee. But maybe we don’t want to be around each other. Maybe he was feeling the exact same thing. Maybe we don’t want to be reminded of death so baldly. Maybe it’s too much like looking into a mirror. Then again, if he’s working with any amount of hope, as I am–I do have some hope left–misguided, foolish, perhaps–hope, nonetheless----maybe we can feed off each other–maybe we can help each other. One thing is for sure, very few people understand what we’re going through right now. To spend some time with someone who really knows, who is actually experiencing the same thing, might be a help to us both.

Yesterday Macy’s delivered the leather recliner and it looks fantastic. It made me more anxious than ever to move out of this place and find an apartment of my own.